![What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 1]](https://media.redcircle.com/images/2025/4/25/5/aebaedac-6ac1-49eb-a1e6-eeb60f43dd3f_0.jpg "What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 1]")
What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 1]
Update: 2025-04-25
Description
Bobby Glen shares his family's journey, from getting a diagnosis to participating in a clinical trial, and the importance of early screening and community support.
This is Part 1 of a two-part series about raising a child with HNRNPH2, a rare disease that affects speech and motor skills.
Part 2 will feature his wife, Nicole, who reflects on how this experience has shaped her work as a pediatrician and her views on patient advocacy and communication differences like stuttering.
If you'd like to reach out to Bobby, you can email him at glennrw@gmail.com.
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![What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 2]](https://media.redcircle.com/images/2025/5/2/18/3fd5b32a-1623-430b-a4d0-3b5a14f25507_140afe13-7e90-4504-b2b9-3f7920a7190d_0.jpg "What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 2]")
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